Not Too Short To Save

“Surely the arm of the Lord is not too short to save nor his ear too dull to hear.” Isaiah 59:1

The year 2021 marks seven years that Hugh has lived with Type 1 Diabetes. 

As I sit here and type this, in the dark hours of the early morning, I have already stopped once to wake Hugh up and make him drink a juice box. I look at his sleeping face, his soft snores still like a child’s, but his long arms and limbs telling me he won’t be a child much longer –  and I feel myself falling. Falling back into the pit of fear that holds me hostage so often. How can I take care of him as he grows older? What’s going to happen when he becomes a teenager? How will he ever go to college and care for himself? What if something happens to him? 

The pit is deep and scary, but I know it well. Sometimes I feel like I’ve been living in that pit for seven years. 

Seven years of living with fear. 

Seven years of watching my son live a life he did not choose. 

Seven years of my asking, begging, pleading with God to give it to me – let me take the burden of Type 1 Diabetes and allow my child to go free. 

Seven years of reaching up, clawing my way out of a pit to a God who seems just beyond my fingertips – a God who can’t save me because my pit is too deep. 

“Save my son, Lord” I cry out in desperation – on nights when it’s dark and lonely. Nights when Hugh’s blood sugar drops dangerously low and my heart stops beating for a few minutes. 

“Save him,” I demand as I sit on the end of his bed, pricking his fingers over and over until I see the numbers on the meter slowly start to rise. 

“Save me,” I beg as I slip under the covers next to Hugh, his dreamy sigh letting me know his body has relaxed. He can return to a peaceful sleep while I stay awake and watch his numbers for a little longer. 

But it seems like God is just out of reach – I can see Him from the depth of my despair and I am stretching up to Him, but His hands can’t quite touch mine. I stand on my tiptoes, I jump, I climb. I clench my teeth and square my jaw – my sheer determination and despair for my son keep me reaching. I can’t stay in the pit. 

I call out to Him, over and over. “I’m here, God! Help me! Save me from my fear and my anger. Save me from the bitterness that creeps into my heart. Save me because I am so mad that my son, out of all the sons, has to have this forced upon him. He doesn’t deserve this. Save me, Lord!”

I can see God’s arms – he’s reaching down to me. But I am too far away. Too far in the fear and the anger. He can’t save me.

His arms can’t reach me. 

But then I catch a glimpse of something else –  I see other arms. They are attaching themselves to the arm of God and they are forming a chain of arms intertwining, tangling, stretching all the way down into the pit – all the way down to me.  

“I’ve been praying for you and Hugh,” she tells me as we stand in a fast food line both ordering Kids Meals for our little ones. I haven’t seen her in years, but she had heard about Hugh’s recent diagnosis. “How is he doing?” she asks. “I know it must be so hard. I’ll keep praying for you.” I look away quickly so she won’t see the tears stinging my eyes. How did she know that I could not pray? How did she know that I so desperately needed to hear those words that day? 

“Here’s my cell number,” she hands me a slip of paper. “You call me anytime. I remember when my daughter was first diagnosed. It was really hard – so I’m here to help.” And I call, over and over, simply to hear those words of hope that I cannot manage to find myself. 

“I want you to know I will do everything in my power to keep Hugh safe at school. He’s going to have a great year,” she writes in an email – her words a salve to my anxious soul. Her dedication and commitment lighting a tiny flame that Hugh will be able to go to school and be ok. 

The arms keep coming – an offer of a night off, a hug, a coffee date, a card in the mail, a friendship formed. And soon the arms are with me – in my pit of fear. And they are grabbing me and holding me tight, lifting me up to the sunlight. And finally, finally I feel myself being wrapped in the arms of God. The arms that are never too short to save. 

Not when they are intertwined with our arms and our hands and our feet. 

I leave the pit behind me, choosing to walk into the arms of the One who has been reaching for me all along. I know this morning won’t be the last time I fall into the pit. Sometimes it sneaks up on me, sometimes I choose to jump in – feet first and with all the anger and righteousness a mother can have. 

Sometimes the pit of fear is easier than reaching for the arms. 

If I have learned anything in these seven years, though, it’s this – The pit will always be there. The pit of fear or anger or selfishness or bitterness – the pit of unfairness or jealousy or rage. We all have one. And we may be in it quite often. But as long as the pit is there, so are the arms. 

Dear Friends, – if you are in your pit, all you have to do is look up. And, friends, if you are out of your pit, attach yourself to the arms of God and reach down.

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The FFF (Formula for Failure)

I was what some people would say, one of those lucky kids in school. I enjoyed reading and taking tests. I liked learning new things and tackling a problem. And I usually could figure out what needed to be done to get a good grade, do it, and then pass the test. School came fairly easy to me.

I liked getting good grades. I was proud of them. I wasn’t very good at sports and was fairly shy when I was younger, but I soon realized I could get attention and praise for my academic achievements. The teachers liked my grades, my parents liked my grades, I could get a shiny trophy at the end of the school year for my grades – it wasn’t long before I equated good grades with success. 

As I got older, I started to think of my classes as something similar to an algebraic equation. What formula did I need to use to get a good grade? It went something like this:

 X + Y = A+100 Success!!! 

How could I perform in this class? What teacher liked for me to ask a lot of questions? What teacher wanted a quiet student who never bothered him? Who wanted me to write long, detailed essays to get an A and who preferred brief, precise essays? I could always figure it out. 

College became even more of a challenge to prove my success. But I loved it. I loved the fact that I had the secret formula to winning . X + Y= A+ 100 Success!!! Every. Single. Time. (Hi Enneagram 3s – Yes, I’m one of you.)

When I graduated from college and started my teaching career, I was still working that formula. In my mind, my principal and supervisors took on the role of my teachers. What did I need to do to get a good grade from them? Simple – pass my observations with flying colors. Show growth in my students. Figure out what equaled an A+ 100 Success!!! and get to work to achieve it. Wow, I was good at this. 

Then I had a son. A beautiful, perfect baby that I adored more than anything else in the world. He was a gift from the day he was born. 

So, of course, I put my formula to work on him:

X + Y = happy, healthy baby (Which still equated to an A+ 100 Success!!! in my mind). 

This is a little embarrassing for me to admit, but I would take the baby book What To Expect The First Year and cheerfully check off my son’s accomplishments each month. I’m not talking about just reading the list and mentally checking things off – I’m talking about taking a pencil to the developmental lists in the book and literally marking each developmental stage off the list. Crawling by 9 months? Check. Saying at least 5 words by 12 months? Check. Eating a variety of foods by 15 months? Check. 

Good Mom + Total Devotion + Sacrifice + Doing Everything Right = Happy, Healthy Baby/A+ 100 Success!!!!

And don’t even get me started about our well check-up visits to the pediatrician. That was my report card. The pediatrician was my teacher and he was giving me the good grades. “He looks great” or “He’s very healthy”, or for bonus points – “He’s thriving” made me feel like I had the formula figured out again. I was getting an A+ 100 Success!!! in motherhood. 

Until one day . . . that awful day when our pediatrician told me our son had Type 1 Diabetes and he was very sick. 

That day a big, red F was scrawled across my life. 

For the first time, I had failed to get the good grade. And what was even worse was that because of my failure, my bad grade, my son would be suffering. He would bear the burden of my F – for the rest of his life.  

My formula had not worked. I was a failure. And it took me a long, long time to recover from it. 

If you have never felt like a failure, if you have never had a red F marked on a page in your life, then bless your heart, you probably haven’t lived to see 40 yet. Failure in life will happen, but here’s what I learned through my first F: We ALL have had failures. Some may have stemmed from our own bad decisions, some may have come out of nowhere. Some may happen in school, in our marriages, in our careers, in our family. And it hurts. Especially when we have a formula that we thought would prevent or protect us from those failures. 

The beautiful part of my failure, though, was that over time I quit judging myself so harshly and criticized others even less. It’s hard to remark on someone else’s scarlet letter when you have one of your own pinned to your chest. 

So slowly, over lots of tears and pleas for help and the silent treatment I gave God, I began to understand that I had been using the wrong formula my whole life. There was no X + Y = A+ 100 Success!!! 

There was only one formula to use and Jesus had given it to us thousands of years ago:

Love God + Love Others = Love

It’s a backwards sort of equation that makes no sense at first. It shows us how to give and not get. It demands that we be last and not first. It stands us on our head sometimes, then pushes and pulls us, and leaves us with more questions than answers. And it’s the only formula that will ever lead us to true success, which really doesn’t look like success at all. It just looks like love. 

I should have followed it years ago . . . 

I wish I could tell you that I have learned my lesson and I don’t strive for those As in life anymore, but I still struggle with it. I fight the urge to compare, to judge others, to work my old formula to achieve success. But now I know that there is no pass and fail in life. There is only one formula, dear friends, and that is love.  

And we all can get an A in that.

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Remember This Day

Every year, on February 4, our family celebrates the day that Hugh was diagnosed with Type 1 Diabetes. It’s a little strange, I’m sure, to you non-diabetic families, to celebrate a day that brought us such an awful diagnosis. But I guess I should say that every year we celebrate the day that Hugh overcame his diagnosis of Type 1 Diabetes.

February 4 – on that day I thought our normal life was over. At least the only life I had ever known with two small children would be over. No more spontaneous trips out of town. No more carefree meals with friends. No more going anywhere without supplies and food. I thought Diabetes was bondage – a slavery made out of blood sugar numbers and insulin shots.

And it was bondage, for a long time. The days were an endless nightmare of holding my son down to give him another shot and him telling me he hated me every time I did it. There were so many tears, so many nights where I didn’t sleep at all, so many angry remarks to God about the pain and the unfairness of it all. 

I wish I could tell you that one day it instantly all changed and I realized how fortunate we really were. But it didn’t happen in just one day. Little victories weaved together over the years to create this new normal for us. One night I went to a party and didn’t talk about diabetes at all. One day Hugh checked his own blood sugar without my help. We went out to eat at a restaurant and I didn’t panic when it was time to order Hugh’s meal. We took a vacation. We sent him to school. We laughed again.

And now the impossible has happened – 5 years have passed and we are doing ok. No, we are doing more than ok. We are happy. We are surrounded by the best friends and family, Hugh loves school, his sister takes care of him with the fiercest kind of loyalty, we take those trips and have those dinner parties and love the life we have been given.

So on February 4, we celebrate. We celebrate with a meal. Not anything special, but we always eat together. I usually buy cupcakes or a favorite cake and get Hugh and Amelia a little gift. I tell Hugh how proud we are of him and I tell Amelia what a great sister she is to Hugh. It’s fun to celebrate together and talk about the progress we have seen over the years.

And yet, and yet . . .

I remember the day.

I remember the panic and the fear. I remember the rush of throwing clothes in a suitcase to get to the hospital as quickly as possible. I remember not having the words to tell my son he was very sick. I remember hugging my baby girl good-bye and not knowing how many days I would be away from her. I remember not knowing what to feed my own child for fear of killing him.

I remember the bondage.

I cry the salty tears.

I taste the bitter herbs and they burn as I swallow.

I eat with haste, with my travel clothes on and my staff in my hand.

That night, every February 4, is my Passover meal.

Why do I have to remember? Why do I re-live the pain of that day?

Why can’t God allow us to forget the pain and the hard days, and just live in the present? Why does he require a Passover meal?

Well, I’m obviously not God, but if I had to guess, I think it would be because of this – First, God wants us to remember the bondage so we can remember who rescued us from it. He wants us to remember that He is loving and caring and there is nothing more that he wants to do than to save us, to bring us out of that place and into the land of milk and honey. He is there and He is waiting with His hand outstretched, ready to grab hold of us and never let us go.

But second, and possibly even more importantly, I think he wants us to remember the bondage because he wants us to see it in others.

Maybe if we forget our slavery, we will not have the eyes to see it in this world. Maybe if we don’t think about the most difficult days, we don’t remember how hard it is for some people in this very moment. Maybe if we dismiss our pain, we will never have the compassion to reach out a hand to the suffering, the hopeless, the dis-heartened, the least among us.

Maybe if we don’t celebrate Passover, we don’t invite others to the Feast.

For we all have been in bondage. We all have been broken.

I’m not sure what your Passover meal looks like, but I bet you have one too. I bet there are times when you remember the pain, the sadness, the grief. But I hope you realize, as I have, that there is a beauty in our Passover meals that we would never have without the bitterness of our tears. I hope you remember who brought you out of the house of bondage. And I hope you remember to invite others to the Feast.

“And Moses said unto the people, Remember this day, in which ye came out from Egypt, out of the house of bondage; for by strength of hand the LORD brought you out from this place: there shall no leavened bread be eaten.” Exodus 13:3

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