Don’t forget that it’s hard. 

These words have been on repeat in my head for several months now. 

Don’t forget that it’s hard. 

Honestly, I thought that diabetes would be easier by now. And to be fair – it is in a lot of ways. New technology has given me the gift of sleep, something I realized I hadn’t had in 10 years. And it’s given Hugh independence and freedom – more than I thought possible when he was first diagnosed. 

And yes, diabetic issues are now second nature to us. We don’t even blink when there are low blood sugars or site changes or supply order problems. We live a life with diabetes in the background most days, kind of like that annoying pain in your back or rattle in your car. You simply learn to live with it. 

But just because we have learned to live with Type 1 diabetes doesn’t mean it’s not hard. 

I have to remind myself of that often.

Don’t forget that it’s hard. 

Especially when you are a 15 year old boy who is navigating the choppy waters of high school, where all you want to do is fit in and not have to worry about things like blood sugar and boluses and alarms ringing out throughout the school day. 

Don’t forget that it’s hard. 

New issues have popped up, like going on overnight trips, learning to drive (What do I do if my sugar drops low and I’m driving, Mom???), the inevitable feeling of invincibility that naturally floods a teenagers brain, and yes, the occasional rebellion from it all. 

Don’t forget that it’s hard. 

When I get upset with him, when he lashes out at me, when I just don’t understand why he would ignore his alarms, I whisper these words to myself. Of course he’s going to lash out. Of course he will have times when he burns out with alarms. Of course he’s sick of diabetes. It’s so utterly and unfairly and miserably hard. 

So what should I do? When I open my eyes to recognize the hard he is living? 

The only thing I know how to do. Give him lots of grace. More grace than what I think he deserves sometimes. Pour heaping amounts of love on top of him. Squeeze him tight on those really tough days and whisper to him that he can do hard things and that we will always help him. Tell him that he’s never alone. 

Maybe the hard is a gift – something I don’t like to admit, but that I’m slowly coming to terms with. Maybe the hard is not just something my family has to go through. Maybe everyone has their own hard thing in their own lives. 

Maybe that’s the gift. Recognizing that hard is hard and we all have to live with it. The divorce. The lost child. The cancer. The betrayal. The bankruptcy. The drug addiction. The loneliness. The job loss. 

I look around a crowded room and I realize the hard is all around me. Maybe the gift of my family’s hard is that now I can see it in others. 

So what should I do? When I open my eyes to recognize the hard others are living? 

The only thing I know how to do. Give them lots of grace. More grace than what I think they deserve sometimes. Pour heaping amounts of love on top of them. Squeeze them tight on those really tough days and whisper to them that they can do hard things and that I will help them. Tell them they are never alone. 

Don’t forget that it’s hard. 

On my really bad days, when I get so angry that my son is living with this, when I lash out at my family and curse the D word all over again, I try to remind myself of these words too. 

Don’t forget that it’s hard, Mama. 

Then somehow, in some beautiful way, I am given grace. More grace than what I deserve. Love is poured on top of me and I can feel arms squeezing me tight – arms that I can’t see, but I know are there. I hear a whisper in my heart  that I can do hard things and that He is right there to help me. And I am reminded once again, that  I am never alone – even when it’s hard.